Here we go again?

Recently my body has been telling me things that my doctors won’t believe.  And it gets more and more frustrating that they put their complete trust in their tests, while ignoring what my actual body is telling them, through conversations with me that are short and perfunctory, disbelieved and ignored.

I want to scream!

It calls to mind an incident with my son when he was a toddler.  I don’t remember the offense, but I do remember yelling and not listening to him.  A diatribe, not a give-and-take conversation.  Finally I asked why he had done…whatever…and his tearful, frantic response was “I’m trying to tell you”.  To this day, when I clearly hear his sweet voice in my memory…my tears flow.  (I love you, Bob!)

I am currently waiting for a return call from the nurse at my breast surgeon’s office, to tell her of new physical developments and see if other tests should be added to my scheduled diagnostic mammogram on Friday.  I have no confidence that I will receive this call prior to the appointment.

Please read the following article, from NPR.  I wish my doctor would.  Everything she says as a patient is true.  If the body is treated, but the spirit is ignored, healing can never be complete.

{Note:  I have just spent a half an hour on chat with a tech for WordPress, trying to paste more than just a link.  Since the tech sees no reason why I would need to do that…and WP does not seem to have the capacity, anyway…I will try to copy and paste a few paragraphs, followed by the url.  Wish me luck.}

“Brush With Death Leads Doctor To Focus On Patient Perspective

The searing abdominal pain came on suddenly while Dr. Rana Awdish was having dinner with a friend. Soon she was lying in the back seat of the car racing to Henry Ford Hospital in Detroit, where Awdish was completing a fellowship in critical care.

On that night nearly a decade ago, a benign tumor in Awdish’s liver burst, causing a cascade of medical catastrophes that almost killed her. She nearly bled to death. She was seven months pregnant at the time, and the baby did not survive. She had a stroke and, over the days and weeks to come, suffered multiple organ failures. She required several surgeries and months of rehabilitation to learn to walk and speak again.

Helpless, lying on a gurney in the hospital’s labor and delivery area that first night, Awdish willed the medical staff to see her as a person rather than an interesting case of what she termed “Abdominal Pain and Fetal Demise.” But their medical training to remain clinically detached worked against her. Later, in the intensive care unit, she overheard her case being discussed by the surgical resident during morning rounds.

I had a hospitalist literally stamp his feet at me, when I got tired of his inability to listen and told him I was going home.
I know that there are people who are getting tired of me still talking about health issues after 5+ years.  My body is working ( or so I will say, unless Friday’s test(s) prove otherwise), so I should be acting well.  But my spirit has been disbelieved, and I continue to suffer the consequences.

3 thoughts on “Here we go again?”

  1. I read the whole article last month, or when it was published, recently. I was shouting “OMG” & “YES!” almost like a dyed-in-the-wool Baptist shouting “Amens!” Since I was 21, I have stressed that medical professionals, while “learning” in classes, need to spend a week or so in the hospital, under a pseudonym. Have an operation. Go to an ER with almost-constant vomiting, & being told you have to stay in the waiting room: we’ll get to you; oh, here’s an extra vomitus bowl. Go to the designated ER with “dementia” at the day & time (Thursday, 5:30 a.m.) prescribed by your medical team; Never see the correct people; Have to spend 4 1/2 days in a curtained partition, with the people stacked in the hall watching your every move, no shower, til finally going to another hospital Monday, to have all your prescriptions stopped, clear the confused brain caused by 3 of said drugs, & start over. Sorry I got carried away with last true story of my friend, who is still reeling from that disaster.
    Point being, as you’ve so eloquently said, they need to be taught to listen, to feel, to treat us as PEOPLE, not “the gall bladder in 402.”
    Please post constantly on Friday. Can your beloved oncologist talk to Friday’s alleged professional??? ❤ (((Hugs)))

    Liked by 1 person

  2. Being frustrated about ailments, whether from a side effect from past issues or reactions and changes in the body we never felt in our lives, can be unnerving. As a society, we make advances yet, don’t know how to make it all “feel” like it was before we contracted our condition. There’s no excuse for complacent behavior in the medical workplace other than a lack of manners and respect our society has come to use. One thing that has never changed is that “the squeaky wheel always get the grease!” Keep the banter going Mrs.B…. grab their arm, pull them close, look them in the eyes, and speak your mind. Be nice but firm…but try to be sure it is worth the effort and something they can fix.

    Liked by 1 person

  3. My grandfather, a doctor, a surgeon, a Chief of Staff, and the man that most pele called “Uncle Doctor”..was always concerned about certain things in medicine and one of them was the impersonal treatment of patients. He was born in 1876 and had a background in medicine that would probably scare most doctors today.. He helped raise me, and I spent every Christmas Day during the afternoon with him and my godmother who was his Superintendent of Nurses, as the hospital where he was Chief of Staff. He visited his patients and visited staff and other patients. Nurses hugged him, and some doctors were a bit ‘afraid’ of him. I am talking in the 40’s and 50’s. I went with him on Sunday afternoons to visit his ‘patients’ who were also friends from WWI, and were housebound..They played cards, they talked about everything..I went on calls with him on farms, where learned to help lance boils, and played iwth the farmer’s kids..and learned about farm animals, while they talked and he gave ‘directions’ on how to care for somethings. I saw people brought to the house at midnight..because something was wrong. When he was dying in 1970, he was in that hospital… The nurses read the riot act to a new doctor who decided to ‘hook him up to tubes’,’Uncle Doctor had delivered them, they knew him and they knew his views. They called me, and unhooked him, they sat beside his bed and read him his Wall Street Journal, they shaved him every morning, the interns and other staff came in and discussed rounds with him. He did NOT allow certain discussions to be held in front of a patient UNLESS the patient was willing to ‘be discussed if it was something unusual. I heard from over 3000 doctors and other from around the globe about how much he had taugth them, and how caring he was. He reminded all constantly that patients are human beings with feelings and emotions..and that was part of medicine.. I watched him, I heard him, and I heard others.. I also think he is one of the reasons I wound up in teaching and always wound with with the ‘problem kids’ and didn’t have the problesm..because he taught me to matter what..and to care..even when it was extremely difficult.
    BTW, that is the attitude of our current PC his appoints ALWAYS run late..and we all sit in the waiting room and heckle his ‘girls’ who wouldn’t have it any other way..And, yes, when he is in public and we run into each other and he is with other doctors, he loves introducing me as his ‘oddball’ patient, who, if something can go weird, it will be me… and that I had NO TROUBLE taking on a hospital staff ..and a hospital board..for having people who couldn’t be mothered listening..

    Your story needs to be required reading for all medical students today, and also a number who are now practicing but forget that people are human beings with minds, with spirits, with sould and who are NOT a practice doll that cannot hear or see!

    Liked by 1 person

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